I got a surprise from the school nurse. She said that my youngest, a five-year-old kindergartener, failed his hearing test twice. The state required that she notify the parents and ask for a follow up. His hearing was fine until this point. The problem appeared only in his right ear and at the highest pitch (they test three levels).
Since he had been coughing and had a sinus infection, we thought it could be fluid. He went to see his regular doctor who pronounced no fluid and no wax. So the next step was to set up an appointment with the ENT and audiologist in his office.
We know it isn’t a hereditary thing as my hearing loss was a birth defect. His next follow up comes on February 3. Yes, it puts a family on the edge. I never dreamed that hearing loss would hit my children (the older two have full hearing).
I debated whether to share this story. But it’s deaf-related and thus, it should be here. Whatever will be, will be. That’s all.
I know some deaf parents are proud to have deaf children while others cry. I’m not going into that. This is simply my son’s story and we’re already working on the next step.
My Son's Hearing
A Religious School Teacher's Story
One of my best friends emailed me because she has a new student in her religious school class who has a cochlear implant. She and her sister are in the 4th class together despite the person with the cochlear implant is in 7th. Here’s how my thoughtful friend explained the situation:
“She doesn’t us American Sign Language – something different and she is also a special needs student (don’t know the details here). She can read and write. I think we will need to write more on the board to help communicate with her and take some of the pressure off her sister. Any thoughts? I want them to feel welcome and since she is so much older and doesn’t speak it will make it harder for her to participate.”
Apparently, things are not going well at home either with divorced parents and Dad having primary custody. Mother refused to allow the kids to get baptized and they’re behind in their studies.
Obviously, there’s more to the story, but I am not going to make assumptions. I told my friend that they need to relieve the younger sister (4th grader) of responsibility in helping her older sister. My friend is going to call the dad to find out how to best work with her.
I hope this story gets better and that the girl learns to communicate the way that it works best for her.
Closed Captioning on Inauguration YouTube Channel
The Inauguration YouTube channel features videos recorded by President-elect Obama, Michelle Obama, Presidential Inaugural Committee (PIC) Executive Director Emmett Beliveau, and others.
President-elect Obama and Vice President-elect Biden are working on making this the most accessible inauguration in history. PIC is partnering with Project readOn to add closed captioning to our YouTube videos. Read more about Project readOn.
What a cool birthday present! I’m a January 20th baby. Interesting, I am not big on politics. I read candidate thoughts, and I vote. But I am glad to have an inauguration birthday as it helps me remember some of the memorable events in history.
In 5th grade, my social studies class watched Carter exit office, Reagan swear in, and the freed hostages getting off the plane. Indeed a memorable day and birthday!
Deafbarrassing Moment for 2009
First, let me tell you about the T feature on hearing aids and cochlear implants. It’s one of the coolest features ever. When you switch from M (microphone) to T (telecoil), you hear nothing except what comes through the phone receiver or headphones. So it’s great for listening to music while on a walk — no noise from passing cars.
I head to the library to pick up my daughter’s reserved book. Not even halfway there, I start hearing static noises — but not quite the same thing as humming when the implant is on telecoil and near electronics. More crackling. Awful.
I looked at the iPod and my cochlear implant. Nothing was wrong. So I took out my BlackBerry and turned on its music (no headphones needed for this). It wasn’t clear if I had the same problem or not. So I played with all the devices for part of the way growing frustrated.
I gave up on the BlackBerry and put it away. Entering the library, I paused the music. I found the reserved book and went to the self-check out counter. A librarian came toward me telling me “Turn the music down.”
Blush x 10.
“But I turned off the music.” I looked at the iPod and it was off, so I switched my implant back to M and heard the music still going.
The BlackBerry. Blush x 100. Scramble, scramble. I never play music on the BlackBerry, but thought I closed the media application. It felt like 10 minutes passed before I find my way back to the music and turn it off. I thought I noticed people looking at me when I entered the library and they probably did as the music was loud.
Not. Going. Back. Soon.
Luckily, I can drop off books in the drop off drive-through. That’s where Pride and Prejudice make its way back when daughter finishes it.
Voice Recognition Cell Phones
We finally feel a part of the cell phone revolution as more phones come out with keyboards, more people use SMS, and more apps become available to help us communicate through text. Then I read an article in the local newspaper that keyboard phones might become obsolete thanks to voice recognition technology for cell phones.
Google and Vlingo have applications that let you commandeer your phone, search the internet, and save on typing. According to the writer, they perform almost flawlessly unless he is in an area with a lot of noise. These applications are available only for iPhone and BlackBerrys.
I would think voice recognition won’t take over 100% of the time for one reason: noise. If you’re in a quiet area or in a meeting, you won’t want to speak commands.
Should this technology advance enough to separate background noise from your voice — then we could be in trouble. In this case, cell phone manufacturers may cut keyboards for good and go with touch screen for times when you can’t speak.
On a brighter note, I’m grateful Google Mail has added SMS capabilities to its Google Chat application. My daughter relies on texting for communicating with me and I don’t have my BlackBerry with me when I am at home. So now I can text her from Gmail.
Healthy Hands
Never thought about it until today — shame on me. If I used ASL on a regular basis, this hand injury would’ve been more frustrating. I couldn’t type much for six weeks, so imagine trying to sign with one hand.
As you can see from the photo, the splint allowed me to move my four fingers. However, I think the thumb has a big job. Though I am a lefty, I think my right hand may have been the dominant hand when I learned the finger alphabet and picked up on some ASL from friends.
Anyone ever get stuck with one hand? How did you work around that from an ASL perspective?
Hearing Reader Asks for Dating Advice
A reader wrote to me about her relationship. I told her I am not in the best position to advise and asked if I could post it as I think she would benefit from a community response rather than one person’s experience. After all, deaf people have all kinds of experiences. Here’s her note:
I know it isn’t easy to draw generalizations, but I’m hoping you may be able to tell me if some of my deaf boyfriend’s behaviors are culturally-based, gender based or just his own temperament.
He is an excellent lipreader and is able to speak with a hearing aid. All of his ex-girlfriends were deaf with one exception: a hearing person who knew ASL. Almost all of his friends are deaf.
I have never dated a deaf person before although I am very interested in diverse cultures. I have been reading as many books and on line info as possible about deaf culture.
I do not know sign language. I am willing to learn ASL (although learning a new language is very hard for me), but he says it isn’t necessary. I’m also not sure if I want to put in a lot of effort right now if he just wants a casual, friends-with-benefits relationship.
Without going into detail about the emotional baggage each of us brings to the relationship, can you tell me if deaf people tend to hold back from getting involved with hearing people?
We have fun together, can communicate and get along fairly well. However, he alternates between utilizing my help (dealing with the courts, banks, etc.) and then pushing me away saying he wants to be independent…which I understand. Do you think there is any long term future for us? If so, how can I promote it?
More Online Captioned Videos and iTunes
It’s hard to find captioned or subtitled videos online. Came across two good resources:
www.Harkle.com
billc.vodpod.com by the awesome Bill Creswell (http://billcreswell.wordpress.com)
2GuysTalking go on the hunt for captioning.
iTunes has an option where you can search all closed-captioned movies (list continues to be skimpy and pitiful). Surprised it doesn’t let you search for music videos with captions like with movies. But then again, there are probably none available.
Apple could also be nice and include lyrics with the song downloads to save us time from searching them. Besides, some bands don’t make lyrics available online. But if you buy them in iTunes, it’s only fair — right?
Tuning
Will Cox sent this to me. Love it. I always wondered how hearing people can sleep. It just bugs me to think of going to bed with my hearing turned on. Sure, I’ve taken a nap with my hearing aids on — but mostly because I was conked. But to go to bed and wait to fall asleep seems different.
http://writersalmanac.publicradio.org/index.php?date=2008/10/28
I try to tune out the boom! boom! boom!
from the shooting range two miles from my house,
and think of the people who live next door
to the targets, or in the din of London and Berlin
where nightingales now sing fourteen decibels louder
to be heard by mates, quintupling the pressure
in their lungs. I’ve never heard a nightingale,
but I know noise came from nausea, and bulls-
eye names the goal for some blurry desire.
Bullseye is a band in Norway playing gung-ho rock and roll,
like the kid down the street whose car speakers rumble
through his closed windows and mine,
drums pummeling our insides. If I told him I once hiked
among redwoods, heard ghostly calls in the stillness,
branches somewhere in the canopy sky
moaning as they swayed, would he say Cool
or Whatever, the way my sons have mumbled it,
intending that I shouldn’t—or maybe should—hear,
all talk target practice, ricochet and sashay, headache
and heartache, duck and cover. In a fable, Lion realizes
too late his vulnerability, the tunnel of his ear,
tiny Mosquito zooming in. Out beyond Pluto, Voyager’s
golden disc offers mud pots, thunder, footsteps,
a Brandenburg Concerto and Johnny B. Goode.
Was the very first song a hum or a shout, laughter
or weeping? When my friend, at forty, praised
her cochlear implants, she complained about work,
the ringing office phones—How do people concentrate?
I consider her vacations—wind surfing, rock climbing,
marathons—how different now that she hears
each splash and scrape, the huh of heavy exhalation.
I wish I could adorn my ears the way warriors in India did,
with metallic green beetle wings, an iridescent
clacking and tinkling at the Feast of Courage. Imagine
if we could hear bread rising, dew forming, the budding
of raspberries, the tear of a cocoon, a minnow’s pulse,
our own cells growing, dying. When my husband
kisses my ear, I love the swoosh, the quiver, his breath
sand driven by wind, my whispered name.
“Tuning” by Christine Rhein from Wild Flight. © Texas Tech University Press, 2008.